Introduction Page
Mowat-Wilson Syndrome (

On March 23 2004 our 3 1/2 year old grandson was diagnosed with
Mowat-Wilson Syndrome.

 We have found that there isn't much information regarding this condition out there, so our hope of starting this website is that we can start a forum to help educate ourselves and others by sharing experiences and information gathered by all those that have been touched by this condition. The following is a list of Links to the major pages of this website.

 Our History  Links Page  Photos  Community Page Forum MWS Study
International Map  MWS Survey ResultsHome

Since the creation of  this website we have been contacted by many other families affected by MWS. If you visit our Community Page you can view photos and read stories sent to us by these sharing people.

This Website is a work in progress. Please email me any information or links that might be useful and I will post them on this website. Thank You

Contact us using the following link -





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