www.mowatwilson.org Forum Index www.mowatwilson.org
Mowat-Wilson Syndrome Forum
 
 FAQFAQ   SearchSearch   MemberlistMemberlist   UsergroupsUsergroups   RegisterRegister 
 ProfileProfile   Log in to check your private messagesLog in to check your private messages   Log inLog in 

Search found 38 matches
www.mowatwilson.org Forum Index
Author Message
  Topic: Is Mowat Wilson genetic or hereditary?
mwilson

Replies: 6
Views: 22907

PostForum: MWS Forum   Posted: Wed Dec 28, 2005 3:34 pm   Subject: Is Mowat Wilson genetic or hereditary?
Jami,
Here is a link to the latest infromation sheet on MWS. It might help answer your quesions.
http://www.mowatwilson.org/Biography%20Files/MOWAT-WILSON%20SYNDROME%2012-05.pdf
You can find it on ...
  Topic: *Sister of 22 yr old MWS
mwilson

Replies: 0
Views: 12624

PostForum: MWS Forum   Posted: Tue Dec 06, 2005 10:26 am   Subject: *Sister of 22 yr old MWS
Hi Everyone, Sometimes it seems that a lot of people read the posts on these boards and never write in. I thought I should write in to say hello. My brother Justin was just diagnosed this year with MW ...
  Topic: *So many questions
mwilson

Replies: 3
Views: 18016

PostForum: MWS Forum   Posted: Tue Dec 06, 2005 10:25 am   Subject: So Many Question
It is my grandson, he is now 15mnts.we live in the UK
sue (baby Jcks Nanna)
  Topic: *So many questions
mwilson

Replies: 3
Views: 18016

PostForum: MWS Forum   Posted: Tue Dec 06, 2005 10:24 am   Subject: So Many Questions
My son Clay is 11. We live in Oakley, CA. USA How about yours?
ivin4jsus@aol.com
  Topic: *So many questions
mwilson

Replies: 3
Views: 18016

PostForum: MWS Forum   Posted: Tue Dec 06, 2005 10:23 am   Subject: So Many Question
hello how old is your son, where do you live
Sue
  Topic: *So many questions
mwilson

Replies: 3
Views: 18016

PostForum: MWS Forum   Posted: Tue Dec 06, 2005 10:22 am   Subject: *So many questions
We just found out today that our son has MWS. I have so many questions, After reading the profiles through laughter and tears, I am curious to know if any of your children have "ticks" (my son has num ...
  Topic: *Hirschsprung's complications
mwilson

Replies: 1
Views: 12668

PostForum: MWS Forum   Posted: Tue Dec 06, 2005 10:21 am   Subject: Re: Hirschsprung's complications
Hi Karen Just to let you know that Sam did have ongoing bowel problems after his pull through surgery;many complete and partial obstructions,weight loss and severe constipation etc We decided after mu ...
  Topic: *Hirschsprung's complications
mwilson

Replies: 1
Views: 12668

PostForum: MWS Forum   Posted: Tue Dec 06, 2005 10:20 am   Subject: *Hirschsprung's complications
Our daughter, Lauren (2 1/2 yrs), will soon be tested for MWS. Lauren does not have a serious heart condition, just a murmur that we were told she'd outgrow. However, she has been diagnosed with HRSC, ...
  Topic: *Facilitated Communication with MWS
mwilson

Replies: 1
Views: 13137

PostForum: MWS Forum   Posted: Tue Dec 06, 2005 10:19 am   Subject: Facilitated Communication with MWS
Hi, I am interested in how you began the FC. Lauren, my daughter is 15 now with MW and is nonverbal. She uses some sign language and gestures and the PECs for communication but seems frustrated at tim ...
  Topic: *Facilitated Communication with MWS
mwilson

Replies: 1
Views: 13137

PostForum: MWS Forum   Posted: Tue Dec 06, 2005 10:19 am   Subject: *Facilitated Communication with MWS
Hello, I'm a support worker and I have been working with a young man with MWS in his twenties. He has been using Facilitated Communication a method by which he requires assistance to point to letters ...
  Topic: *Unusual episodes in people with Mowat-Wilson
mwilson

Replies: 1
Views: 12435

PostForum: MWS Forum   Posted: Tue Dec 06, 2005 10:18 am   Subject: Unusual episodes in people with Mowat-Wilson
Our daughter Caty goes through episodes of urine retention. She has held it up to 20 hours while I frantically push fluids. Once we brought her to the ER to have her cathed. This only happens when she ...
  Topic: *Unusual episodes in people with Mowat-Wilson
mwilson

Replies: 1
Views: 12435

PostForum: MWS Forum   Posted: Tue Dec 06, 2005 10:17 am   Subject: *Unusual episodes in people with Mowat-Wilson
I would be grateful if parents could let me know if they have observed any of the following features in their children or adult relatives with Mowat-Wilson. The reason I ask is because Sam (Sarah's so ...
  Topic: *Newly Diagnosed
mwilson

Replies: 1
Views: 12771

PostForum: MWS Forum   Posted: Tue Dec 06, 2005 10:16 am   Subject: Newly Diagnosed
Hi We fully understand, we also read alot of info and dont write in, until we are fully sure, also until our Jack is over his big heart operations, Our Kelly (Jacks Mum) will not add all his details, ...
  Topic: *Newly Diagnosed
mwilson

Replies: 1
Views: 12771

PostForum: MWS Forum   Posted: Tue Dec 06, 2005 10:15 am   Subject: *Newly Diagnosed
We have been viewing your website for quite some time now and have been reluctant about writing in. Our son, Samuel, now 7 months old has been diagnosed with MWS. We recently sent blood samples to Fra ...
  Topic: *Question for Parents of MWS children
mwilson

Replies: 1
Views: 12111

PostForum: MWS Forum   Posted: Tue Dec 06, 2005 10:14 am   Subject: Question for Parents of MWS children
Hi there. Looking at the little research that has been done, "....most MWS children are small although a few are average height and some are tall!!" Small heads are common too. My son is slight but is ...
 
Page 1 of 3 Goto page 1, 2, 3  Next
All times are GMT - 8 Hours
Jump to:  


Powered by phpBB © 2001, 2005 phpBB Group
Return to MWS Website