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*Newly Diagnosed

 
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mwilson
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Joined: 06 Dec 2005
Posts: 39
PostPosted: Tue Dec 06, 2005 10:01 am    Post subject: *Newly Diagnosed Reply with quote
My daughter has recently been diagnosed with MWS. She is 11 next month and up until now referred to as Globally Developmentally Delayed. Is this a similar diagnosis that others have had. Recently had meeting with our genetics expert and due to the newness of the syndrome could not give us any long term information of what to expect next. Still watch and learn. Good thing is that our daughter is extremly happy and sociable, thank god.
emmavp@btopenworld.com

Last edited by mwilson on Tue Dec 06, 2005 8:20 pm; edited 1 time in total
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mwilson
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Joined: 06 Dec 2005
Posts: 39
PostPosted: Tue Dec 06, 2005 10:01 am    Post subject: Newly Diagnosed Reply with quote
Hi it is Kelly and Nigel we live in the UK please contact us
kellymoss@blueyonder.co.uk
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