www.mowatwilson.org

[mwilson]

Just wondering - I have a son exhibiting many of the symptoms of MWS (i.e. severe speech delay, sleeping problems, cognitive delay, severe constipation, etc) and the specialist suggested MWS... My question for parents of kids with MWS - Our son is also severely undeweight (well below 1%) despite the fact that he eats a lot. Is this common, and if so are there suggestions to help him gain?
devinbig@aol.com

[mwilson]

Hi there. Looking at the little research that has been done, "....most MWS children are small although a few are average height and some are tall!!" Small heads are common too. My son is slight but is average height for his age. He eats like a horse yet remains thin. I am forever trying to get extra calories into him - yet feed him healthy foods. Unfortunately he has an intolerance to cows milk and has soy formula and soy milk but can tolerate dairy in other foods. Most 'build up drinks' are dairy based and not suitable. Also he is intolerant to too much wheat/gluten (not really sure which), this gives him excema. However friends of mine give Pedasure which is dairy based 'milk shake' build--up drink to their underweight special needs children. I have read that other MWS have incredible appetites, yet remain slim so that isn't uncommon I guess. Please feel free to contact me further for any other questions you may have. Regards, Sarah Bell Cheltenham UK
sarah@laureltyne.com