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*Newly Diagnosed

 
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mwilson
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Joined: 06 Dec 2005
Posts: 39

PostPosted: Tue Dec 06, 2005 10:15 am    Post subject: *Newly Diagnosed Reply with quote

We have been viewing your website for quite some time now and have been reluctant about writing in. Our son, Samuel, now 7 months old has been diagnosed with MWS. We recently sent blood samples to France for research. It is just really hard right now because we have so many questions. We are just really happy that this website is here.
rhart1975@aol.com


Last edited by mwilson on Tue Dec 06, 2005 8:19 pm; edited 1 time in total
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mwilson
Site Admin


Joined: 06 Dec 2005
Posts: 39

PostPosted: Tue Dec 06, 2005 10:16 am    Post subject: Newly Diagnosed Reply with quote

Hi We fully understand, we also read alot of info and dont write in, until we are fully sure, also until our Jack is over his big heart operations, Our Kelly (Jacks Mum) will not add all his details, Dave knows alot about Jack and so does Kelly from the Uk site, but for now we are just learning like yourselves, Our Jack is now 13mnts and is waiting for heart correction, but in himself he is doing really well, you can contact us in the uk chat room, other uk families also go into there who we dont really know, but all is secure, and you can ask questions from other families which is helpful from Sue
sue jacks nanna
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