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*MWS and Learning

 
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mwilson
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Joined: 06 Dec 2005
Posts: 39

PostPosted: Tue Dec 06, 2005 9:40 am    Post subject: *MWS and Learning Reply with quote

Hello all. My daughter, Neva is 2-1/2 and has been diagnosed with Mowat-Wilson Syndrome. I'm interested in learning about educational techniques / styles that have been successful for kids with Mowat-Wilson. I'm trying to prepare myself and Neva for the future. Did your kids go through an inclusive public / private school system or a special education school system? What were the successes and challenges that you and your child faced? Any advice that you would like to share on how your children learned and what you see for them in the future? Thank you very much for your time! Alicia

Last edited by mwilson on Tue Dec 06, 2005 8:22 pm; edited 1 time in total
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mwilson
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Joined: 06 Dec 2005
Posts: 39

PostPosted: Tue Dec 06, 2005 9:41 am    Post subject: MWS and Learning Reply with quote

Hi Sam started "early intervention" from 9 months,attented "special school" from about age 4 but we did not like this for Sam and as none of the other children had speech either it seemed more sensible to send him to our "regular" school with a full time aid and alot of help from us. We are now facing "high School" as from next year but I don't think he will manage a regular high school despite alot of support so we will have to re think what to do. We have not had any great "outcomes" from any "communication" system tryed so far and are still searching,we have a therapy team meeting in the house in a few weeks so we may get some new ideas or tools.Sam has a great time with his computer and plays very simple cause and effect games and reading books CDs etc He understands alot more than he can let us know which is very frustrating for us both (more for him I'm sure). His eyes tell you alot and he takes your hand and "leads" you to what he wants,he needs lots and lots of "praise" "good boy Sam !!!!!" and clap hands when he gets things right ect. I'll post again when I have seen the new therapy team. Best Wishes Sarah Sam 11
sarah fitzsimons
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mwilson
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Joined: 06 Dec 2005
Posts: 39

PostPosted: Tue Dec 06, 2005 9:43 am    Post subject: MWS and Learning Reply with quote

Hi, my son, Ryan, has Mowat Wilson Syndrome and is almost 6 years old. He went to a wonderful pre-school setting for special needs children and is now in a Special School. He loves it and because of the small class size he is now very confident, has made friends and identifies with the group. I wouldn't consider mainstream for him and I looked into all options very carefully. Hope this helps, would be happy to discuss this further. Sarah Cheltenham
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