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Medicine to help contol behaviour issues and sleep issues

 
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Nigel



Joined: 06 Jan 2006
Posts: 2
Location: Preston, Lancashire, Uninted Kingdom

PostPosted: Sun Apr 22, 2007 4:48 am    Post subject: Medicine to help contol behaviour issues and sleep issues Reply with quote

Our son Ben is now 10 years old (11 in May) he has always had behaviour issues and poor sleep patterns.
Up until 1 month ago he was on Ritalain to control his behavior, but now he is on a New medication called Strattera, Since being on this new medication we have notive a massive improvement in his behaviour but whats more he sleeps all night now. This has helped him 100% as he is getting more sleep we find he can concentrate more. Here is a link to the Strattera site http://www.strattera.com/index.jsp
Has anyone else tried this medication and if so was it a success .

Thanks

Nigel Smile
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Leezmum



Joined: 02 Apr 2007
Posts: 3
Location: Australia

PostPosted: Mon Apr 23, 2007 5:23 pm    Post subject: Reply with quote

I was talking with Lee's carer in regards to this Nigel. The Doctors suggested zyprexa, which has been quite successful - however, the dose goes by weight of the person in what dose is given.
We also "redirect" Lee when his behavours are not approprate, he's usually very predictable in his behavours, so therefore redirection can be put into place before he gets unruley. Twisted Evil

Question They have also found a bacteria that causes him to vomit and gage, I will be speaking to staff later to find out what it was they found in Lee's tests?

Very Happy I also got my camera/cam to work with skype! Might chat again sometime?

Cheers

Shez
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alette



Joined: 21 Apr 2007
Posts: 3
Location: London, UK

PostPosted: Tue Apr 24, 2007 1:13 am    Post subject: Reply with quote

Hi Shez
Hope u don't mind me tapping in on your response to Nigel.

Our 15 month old daughter, Genevieve has had feeding problems from birth including more recently, gagging and vomiting.
After a brief interest in solids when she was 6 months old, she has since refused even to open her mouth. I am very interested to hear more about this bacteria u mention as feeding is a 'nerve racking' (in case she vomits the little milk we manage to get into her) fulltime job!

Thanx

Alette
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Leezmum



Joined: 02 Apr 2007
Posts: 3
Location: Australia

PostPosted: Tue Apr 24, 2007 4:45 am    Post subject: Reply with quote

Hi All,
Sad
Regretfully, I feel this is not going to be of help. They have found a thing called Helico Bactor, which is more common in people who live in supported accommodation houses. It is a bacteria that causes stomach ulcers. Although Lee doesn't have ulcers, it may be the cause of him vomiting and dry retching. They are treating it with certain antibiotics. I will let you all know if there is any dramatic change in Lee that might be of help.

I also have to say unfortunately, Lee also at a young age vomited and gagged (In his first year) he still does it at 27, so I guess it one of the symptoms of MWS.

With Lee, when he eats he will gobble things down quickly, we now supervise his eating and also give small bits as with sandwichwiches, and biscuits and foods that can stuffed straight in the mouth.

We also encourage him when he eats nicely and doesn't gobble.
Sometimes even looking at food he has a gagging reponse to it.
We remind him he is gagging, trying not to get angry.
Sometimes it's behavioural with him also being impatience and anxious.

Don't know if this is of any help to you.

My advice, brace yourself for the long haul. Laughing Shocked

Cheers

Shez
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alette



Joined: 21 Apr 2007
Posts: 3
Location: London, UK

PostPosted: Wed Apr 25, 2007 1:06 am    Post subject: Reply with quote

Thought it might not be that straight forward.
Thanx anyway..............had to ask the question!

Alette
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Deby



Joined: 07 Dec 2005
Posts: 5

PostPosted: Fri Aug 21, 2009 5:17 pm    Post subject: Medicine to help contol behaviour issues and sleep issues Reply with quote

Hello Nigel,
I know this post is rather old but was wondering if you still feel the same way about the meds? Are they still working and have you seen any other improvements or regression.
Thanks Deby
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Kellys sister



Joined: 23 Dec 2005
Posts: 7

PostPosted: Wed Dec 01, 2010 7:38 am    Post subject: Gaggingd Reply with quote

Hi everyone,
My sister is 36 and she gags as well. She actually started gagging a few years ago when she eats and sees food. She ended up having an upper endoscopy to check for an ulcer and what they found was that she had h pylori (or helio bacter). It's quite common for all people, not just those with MWS. Drs really don't know for sure what causes it but a quick round of a certain kind of antibiotic clears it up.

She doesn't gag much anymore so perhaps this was causing it. I, personally, think she (and maybe others) have an inflamed esophagus caused by GERD. Kelly doesn't have Hirschsrungs, but maybe GI issues in general are common and that would include the esophagus I think. If you have an inflamed esophagus, it can feel like you have a lump in your throat or mucus that needs to be cleared when all that's really there is some swelling. So they try to clear it by gagging but it never really clears. And maybe food makes it worse so the site of it reminds them of that and so they gag when they just look at food. Just a thought of course! I'm no Dr! Smile
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